This week has been much tougher because he caught that lovely stomach bug that's been going around. The dr says that the stress on his body while sick can create more spasms, which it has. It spiked pretty good Tuesday night through yesterday. To the point that watching him go through this, started to worry me, and I've seen him have them for awhile now. Speaking while his dr's office I was reassured that his body is fighting both being sick and the spasms and is just having a hard time finding a balance and get rid of the bug. Due to the activity of his spasms, we doubled his ACTH dose yesterday to 80 units, and stayed the same on Sabril. He slept a lot of yesterday away, which was a blessing on me as he gave me his bug, which did wonders in getting rid of both of ours. He hasn't had quite as many today, which is starting to make me feel a little better. And things are finally set for his additional testing at children's. I should be hearing them hopefully Monday to schedule his MRI, spinal tap and blood draw for labs, all in one swoop, thankfully.
He's still going to be adjusting to an increased dose in meds for a few days I'm sure, so his mood and schedule will probably be completely random this weekend in celebrating his birthday. But we have much to celebrate. That he's feeling better and won't be sick on his bday. That the double med dose may (and I stress that may, as he's only been on it two days) be helping to knock his spasms back down. That our family and friends are starting to arrive in town to help us celebrate. That despite the stress, struggle and frustration that some of this last year has brought us, it has also brought us joy, laughter, excitement, and so much love in our baby boy. His smiles (with two little teeth popping through) melt our hearts and couldn't be more proud to be his parents. Happy (almost) Birthday monkey, Mommy and Daddy (and Sadie) love you so much.
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